On the Road Again

Hello all. Well, I am on the road again. Sorry for the short blog but I had to do a lot of packing. Mom, Dad, and I are going to Riley Children's Hospital in Indiannapolis this week. I have been having a difficult time with my tube feedings. After I found out that I have two hands - who knew? It's not like there is some sort of baby school you go to - I have been grabbing everything. This includes my NG tube, tape, toys, Mom's hair. I could go on and on. Did I mention that I have reflux? Yep, 3 months going on 30 years. My reflux may be an unfortunate side effect of having the NG tube for so long. It is really hard for me to tolerate my feedings and so, after a lot of tears and Mom and Dad trying everything but standing me on my head - soft spot you know - it is time to change things up a little.

I have a swallow study on Monday where they check out how I....... wait for it...... go figure, how I swallow. Then if I don't pass that, I will be admitted and a G-tube will be placed. I am not a medical professional, Mom's asleep so I can't ask her, and Dad is only typing my dictation so here goes. A NG tube is short for nasogastric. A G tube is short for gastrostomy tube. Basically, a semi-permanent tube will be placed in my stomach that Mom and Dad will feed me through. They say the procedure is relatively simple but will require a 72 hour in-patient stay.

I have all of my favorite toys packed up and a new outfit to wear. It says "peas and carrots" on the front. It has pictures of peas and carrots and is a lovely shade of green. Dad thinks I wear too much pink. I will try to meet as many new people as I can. Maybe I will get a few of their pictures too. I will see you all again in a week!